7th Infusion - IVIG
Monday was spent at Children’s hospital receiving his first dose of the IVIG without the chemotherapy mixed in. He did great, it was a shorter infusion time but with dr. visits and labs, still ended up being an 8 hour day for Max. He enjoyed visits from Grandma’s, movies, coloring, visiting with other kids getting infusions, a leisurely lunch and a snooze on grandma’s lap, he was so tired the nurse was able to de-access his port and rip the tape off without even waking him up. He did really good getting the infusion and had a couple days of being clingy, feeling yucky and extra tired. The IVIG infusion cans still cause side effects like headache, flu like symptoms with achiness, fatigue and others. Overall he did so much better without the chemo. We have even noticed an increase in his appetite since the chemo effects are wearing off. The steroids make him crave salty foods, so I have been trying to limit him from too many snacky foods. Anyone have ideas of healthy food that might satisfy his sodium desire?
Monday was spent at Children’s hospital receiving his first dose of the IVIG without the chemotherapy mixed in. He did great, it was a shorter infusion time but with dr. visits and labs, still ended up being an 8 hour day for Max. He enjoyed visits from Grandma’s, movies, coloring, visiting with other kids getting infusions, a leisurely lunch and a snooze on grandma’s lap, he was so tired the nurse was able to de-access his port and rip the tape off without even waking him up. He did really good getting the infusion and had a couple days of being clingy, feeling yucky and extra tired. The IVIG infusion cans still cause side effects like headache, flu like symptoms with achiness, fatigue and others. Overall he did so much better without the chemo. We have even noticed an increase in his appetite since the chemo effects are wearing off. The steroids make him crave salty foods, so I have been trying to limit him from too many snacky foods. Anyone have ideas of healthy food that might satisfy his sodium desire?
How about lightly salted nuts? At least that way it's healthy food with protein and not chips or something. Trader Joe's carries some nuts (including peanuts and almonds, I think) that have less salt than usual. And I've seen Planter's 'less salt' peanuts at Bartell's.
ReplyDeleteEdamame with sea salt.
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