I am so sorry that it has taken me so long to add another post, I know everyone has been waiting for an update, best to assume that no news is good news=). Max's scan came back good, there were some suspicious spots in the lower lobe of his lung above the original tumor, but not enough to determine that the cancer has spread. The oncologist discussed the findings with the radiologists and determined that we would just watch it to see if it changed at his next scan. It could also be shadows where Max may not have taken a deep enough breath or scarring from the surgery, etc. Needless to say we are not concerned. We also decided that now was the time to cut his steroid dose in half, this is a critical turning point in his treatment, we are watching very closely to make sure we doesn't exhibit any additional symptoms or relapses. The clinical trial requires that the symptoms have to progress over 3 days before we can disucss backing out of the study or getting permission to change the doses.
He did really well in this round of chemo, still a long day, but we got a really helpful and attentive nurse, I was a little better prepared this time and it paid off, Max received a higher dose of chemo on this round and got more nausea medicine, which made him a little more sleepy and we got him to take a nice nap.
We have so appreciated all the volunteers that help make going to the hospital a fun thing. One of the highlights of Max's day was his visit with the "Singin Chaplain", he shares his ministry with sick kids at Children's hospitals on Mondays, we have enjoyed his songs and visits to our hospital room over the months. Max had a great time tapping his foot and dancing along with his music today, Kelly also gave us a second cd to add to our collection. You can view more about his ministry at his website and read his touching story at:
http://www.chaplainkelly.com/ and hear his story and interviews with komo 4 and king 5.
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| Dancing and Singing with Chaplain Kelly |
