Burt Family 2013

Burt Family 2013

Saturday, April 2, 2011

Chemo - Round 5

It's amazing to think we might only have one more round of chemo left! Max did great again today he was much more cuddly and less active which made sitting still all day much easier. Since our last change in medication Max has had some more noticeable tremors that his therapists have picked up on, some more sleeping isssues, and has become slightly more clingy lately, and he also had a big drop in his blood counts.  We have made the decision to up Max's steroid dose for the next couple weeks to see if it changes anything.  We will be watching carefully to see if there is any changes the next couple weeks and then we will begin to decrease the dosage much slower this time.  We have an important care conference coming up this Tuesday with all of Max's doctors, specialists, nurses, therapists, social worker, counselor, etc. to discus his progress, his future, and  to make sure we are all on the same page.  We have also been in conversations with a pediatric neurologic hospital in Illinois to discuss a different treatment plan.  We have a lot of decisions and key events coming up that we would appreciate your continued prayers.

I didn't get a chance to take pictures during today's treatment, but here a few pics from past treatments:

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