The Burt Family Blog: Our little ski bunny

Tuesday, March 6, 2012

Our little ski bunny

We had a chance to get up to the pass for an evening of skiing with the family. By the end of evening she was on her own no longer needing any assistance. Had a hard time capturing a video, couldn't ski backwards fast enough to keep up with her.

http://www.youtube.com/watch?v=TK4MV3bBbHE

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FAQ: Doctor Talk

WHAT DOES MAX HAVE? Max has a neuroblastoma (malignant tumor) of his right adrenal gland. With surgery the tumor was removed, but was found in his lymphnode, it is staged at IIb. Max has also been diagnosed with a syndrome called Opsoclonus Myoclonus Ataxia Syndrome (OMS).

WHAT IS OMS? OMS causes problems with coordination, walking, trembling; and causes rapid eye movement. OMS is thought to be triggered solely by neuroblastomas. The OMS is his body's immune system producing antibodies to combat the cancer and these antibodies are attacking the nervous system function and motor skills in his cerebellum.

HOW DOES IT GET FIXED? First surgery to remove the tumor. Then lots of medication, chemotherapy, PT/OT and speech therapy to help his motor skills. And prayer. :)

Burt Family 2013

Tuesday, March 6, 2012

Our little ski bunny

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