The Burt Family Blog: Max's Top Five Memories

Thursday, June 21, 2012

Max's Top Five Memories

1. Feeding and learning how to teach the dolphins to wave and talk to him.

3. Meeting Lightening McQueen and Mader.

3. Getting to meet the Harrison Ford Stunt Double and watch the awesome stunt show and receive an authentic Indiana Jones autographed hat.

4. Personal meet and greet with all the Toy Story and Pixar Characters and riding Toy Story Mania and Buzz Lightyear Rides as much as he wanted without any wait.

5. Getting to drive our airplane and be honorary co-pilot for the day.

1 comment:

Linda MJune 22, 2012 at 10:31 AM
This is a treasure. I am amazed at the red carpet treatment and all the truly special things that Make A Wish provided for your family - what a wonderful thing.
ReplyDelete
Replies

Add comment

FAQ: Doctor Talk

WHAT DOES MAX HAVE? Max has a neuroblastoma (malignant tumor) of his right adrenal gland. With surgery the tumor was removed, but was found in his lymphnode, it is staged at IIb. Max has also been diagnosed with a syndrome called Opsoclonus Myoclonus Ataxia Syndrome (OMS).

WHAT IS OMS? OMS causes problems with coordination, walking, trembling; and causes rapid eye movement. OMS is thought to be triggered solely by neuroblastomas. The OMS is his body's immune system producing antibodies to combat the cancer and these antibodies are attacking the nervous system function and motor skills in his cerebellum.

HOW DOES IT GET FIXED? First surgery to remove the tumor. Then lots of medication, chemotherapy, PT/OT and speech therapy to help his motor skills. And prayer. :)

Burt Family 2013

Thursday, June 21, 2012

Max's Top Five Memories

1 comment: