2 Year Cancer Scan

We are very excited to share that Max received another good report after his scan.   The report read “No new evidence of Neuroblastoma”.   He did great during todays tests, and he had lots of fun playing Santa and visiting all the dear providers that take such good care of our family.

The Oncologist reviewed all the reports with me today and we had a reflective moment as we looked back on the last 2 years of Max’s life.   He has come a long way in these last two years and has fought hard, we are so thankful for the Lord’s provisions and strength to see us all through. 

 
We are having great success with this new protocol to help his autoimmune disease that he developed from the Cancer.  He is taking high dose pulses of steroids one week a month while we are trying to decrease his daily steroid doses. He is getting pretty sick to his stomach while on the meds, but overall it is making life better.  We are scheduled to drop his evening dose starting on Christmas Eve and we will be back to the place we were at last year when he had his relapse.  You could join us in prayer that as we drop his dose of meds he won’t show any signs of relapse.  The doctors are still not certain if he will need to do one more round of chemo to make sure we have reprogrammed all those attacking antibodies.  If we did do more chemo it would consists of 4-6 rounds once a week in January/February, and we would probably head back to Boston at that point.  If he sails through the holidays without any relapses, we could be in the clear and possibly looking at a surgery to remove his port in February and just maintaining the same treatment plan for the next year or so.  We are very hopeful for the best and appreciative of all the prayers!

Ready to get deaccessed and go home!