The Burt Family Blog: December 2013

Thank you Janine! Your gift made this infusion more fun!

FAQ: Doctor Talk

WHAT DOES MAX HAVE? Max has a neuroblastoma (malignant tumor) of his right adrenal gland. With surgery the tumor was removed, but was found in his lymphnode, it is staged at IIb. Max has also been diagnosed with a syndrome called Opsoclonus Myoclonus Ataxia Syndrome (OMS).

WHAT IS OMS? OMS causes problems with coordination, walking, trembling; and causes rapid eye movement. OMS is thought to be triggered solely by neuroblastomas. The OMS is his body's immune system producing antibodies to combat the cancer and these antibodies are attacking the nervous system function and motor skills in his cerebellum.

HOW DOES IT GET FIXED? First surgery to remove the tumor. Then lots of medication, chemotherapy, PT/OT and speech therapy to help his motor skills. And prayer. :)

The Burt Family Blog

Burt Family 2013

Monday, December 16, 2013

December IVIG Infusion

Saturday, December 14, 2013

Merry Christmas

Sunday, December 1, 2013

Dental Fun!