The Burt Family Blog: April 2014

Sunday, April 6, 2014

Happy Birthday to our

Smart, Spunky, Determined

7 year old!

Before Locks of Love

After Locks of Love

FAQ: Doctor Talk

WHAT DOES MAX HAVE? Max has a neuroblastoma (malignant tumor) of his right adrenal gland. With surgery the tumor was removed, but was found in his lymphnode, it is staged at IIb. Max has also been diagnosed with a syndrome called Opsoclonus Myoclonus Ataxia Syndrome (OMS).

WHAT IS OMS? OMS causes problems with coordination, walking, trembling; and causes rapid eye movement. OMS is thought to be triggered solely by neuroblastomas. The OMS is his body's immune system producing antibodies to combat the cancer and these antibodies are attacking the nervous system function and motor skills in his cerebellum.

HOW DOES IT GET FIXED? First surgery to remove the tumor. Then lots of medication, chemotherapy, PT/OT and speech therapy to help his motor skills. And prayer. :)

The Burt Family Blog

Burt Family 2013

Sunday, April 27, 2014

Happy 5th Birthday Max and Molly!

Sunday, April 6, 2014

Happy 7th Birthday Madison