Chemo - Round 2



Max playing some Xbox 360 while
waiting to get hooked up



We made it through round 2! Max did a great job today, we were able to try to shave off a day of treatment by combining some of the infusions instead of running them back to back.  It made for one long day, but at least its over and he doesn't have to endure a second day.  They continued to monitor all his vital signs every 15 minutes all day.  He had several episodes where he developed high blood pressure and a fever but we were able to make it through without having to be hospitalized but we will continue to keep a close eye on him at home. We were able to get a crib this time so Max could take a brief nap in between  interruptions.     

We also had another evaluation with Dr. Park, the neuroblastoma specialist and head oncologist today.  She was so pleased with his progress.  When we were first seen last month he was scored at a 7 on a scale of 1-10 for the severity of his OMA symptoms, in his reevaluation today he was scored at a 4. This is great news!  We are going to try to back off on some of his steroids to see if the progress continues and some of his side effects subside. We are also going to try to limit the amount of dr appts, and lab visits the next couple weeks so we can try to get him back on a more normal sleeping schedule. Although they still want him seen by OT/PT and Speech Therapy as much as possible to continue the progress while we play with the dosages on his steroids. We are still battling the insurance company on several different issues including his chemo treatment and the coverage of his OT/PT and Speech Therapy, hopefully now that the holidays are behind us we can make more progress.

Daddy rewarded Max with some cheddar  "chemo" corn