3 Month Checkup

Peek-a-boo!

It's hard to believe that it has been 3 months since Max's diagnosis of neuroblastoma cancer and OMA. We met with the team last week to discuss Max's progress and everyone is amazed at how well he is doing with all of his treatment.  He is really excelling in the home therapy program, he is walking, talking and becoming more independent daily. He does so much better working with the therapists in his own environment as opposed to the clinical setting, however he continues to work with therapists at the hospital that deal with cancer kids.  His oncologist and team can't be more excited to see his progress in all areas, he will have another round of Chemo on Monday and then possibly just two more rounds after that.  The steroid regimen will continue another year and a half and they haven't quite decided how long he will have to get his infusions of IVIG, it could be 2 years or longer.  A lot of the decisions depend on the scan Max had done today,  he will continue to have a series of scans every 3 months to watch for the spread of the neuroblastoma. Today is the first one since his initial diagnosis.  We will meet with the oncologist on Monday prior to receiving the chemo to discuss the results and to possibly order more tests depending on the outcome. From the outside Max looks like a normally functioning kid, however, he is still dealing with ataxia (tremors, instability, and motor control issues), slurred speech, and sleep and behavior disturbances (which is most likely from his steroid regimen).  We are also keeping close tabs on his eating as he still hasn't gained any weight and making sure he continues to hit all of this developmental milestones. Overall we can't be more pleased with his recovery, we know God has been in control of it all and we can't thank you enough for all the prayers for Max. Keep it up!

Max waking up from anesthesia after his scan today