We received a very nice letter this past week from a grandfather who has a granddaughter, Alexa, fighting the same battle that Max is. He was very encouraging and supportive for what Max and our family have been and will be going through. He and his family are working on connecting more patients, families and friends dealing with OMS to bring more knowledge of this disease in hopes that we can someday bring a cure. If you have a minute we would encourage you to check out their website. It includes great features and they have compiled lots of information on this rare condition, and if you have tissues handy and feel up to the challenge check out the videos. We have been asked by doctors to put together video footage of Max as well, but I don't think we are emotionally ready for that challenge yet. Hopefully soon...
http://www.omslife.org/
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