Neuro Exam

We had a nice meeting with Max's neurologist, it was our first appointment where we didn't have residents, and other students involved trying to learn more about Max, and we could discuss issues a little more casually. 

We have two different neurologists involved in Max's care, One is the the director of pediatic neurology at Swedish and one at Children's, both have seen at least one other patient like Max in their careers. Although each case is completely different, it is really hard to know what is the best treatment plan, everyone has a different opinion.  We were able to discuss other protocols, however since we have not been able to wean Max to a manageable dose of steroids yet, we are really stuck in the protocol that we are in. The neurologist has done a lot more research and discussed Max's case with other neurologists around the nation, one of the issues that we are also facing is that Children's Hospital doesn't have the materials or labs to be able to follow someone else's treatment plan, so it would require us to fly to another institution frequently.  We really need this treatment plan to work so that we don't have to find a different hospital.  We would really appreciate your prayers for this and if we do need to consult another institution the timing would be very clear to us as parents.