Burt Family 2013

Burt Family 2013

Tuesday, July 19, 2011

8th Infusion - IVIG


Max getting his infusion all by himself no longer needs to sit on mom's lap
 Today after flying in late last night Max and I made it to the hospital prepared for a long day. Max is such a trooper, today he became even more independent. He got his port accessed and labs drawn all by himself without sitting on my lap or even shedding a tear. He is ready to conduct his own clinic visits, he can weigh himself, measure himself and get his blood pressure tested without even being asked. We were at a specialist appointment last week and the dr conducted the normal exam, but didn't check Max's ears, before the doctor left the room, Max walked over to him grabbed his light and put it in his ear reminding the dr that he forgot a step. Today was no exception, now that he knows what to expect he was the ideal patient.   We have had a lot of tests and appointments the last couple weeks as we are finishing up his 6 months checkups with all the different disciplines.  I have a lot to update on the blog and will try to start adding updates as I can on all the details we are finding.

5 minutes later, he curled up like a puppy and took a snooze.
 Slept right through his vital signs being taken every 10 minutes

Dad got to come for a quick visit on his lunch break and
we got to hang out with Aaron our favorite infusion nurse.

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