We had another checkback with endocrine this last week to do another growth and hormone check. All seems to be well no issue with diabetes and other hormone imbalances.
Our current goals is to try to taper Max's doses to a manageable level, however it has proven to be a much bigger deal than we originally expected. He is currently at 8mg a day. A manageable dose for his size would be 1mg every other day. 
Over the last few months everytime we have tried to decrease the amount his OMS symptoms flare up. It is also possible that his lone adrenal gland is not waking up the way we expected and when we are decreasing his medication his body isn't making up the difference. When this happens older kids complain of extreme fatigue, muscle pain and weakness and an overall sense of feeling yucky.
Growth: Max has dropped from being in the 95th percentile to being in the 7th percentile, but he is still on the charts which is a good thing. The doctor thinks he will have grown 2.2 cm this year, an average kid grows 10.5 cm per year. At 27 months he is still wearing 12-18 month clothes and his twin has outgrown him by 6 pounds.
He will be eligible for receiving growth hormones within the next year, if we can get him weaned off his medication. Until he gets taken off these drugs he won't have any more growth. The discussion that needs to occur with all of his doctors is whether or not this is a good idea. Growth hormones are natural hormones that every one has, but when given artificially it is a nasty shot that would have to be given daily at home. It would also stimulate his whole body to grow quickly including any cancerous cells. The best thing that we can cling to right now is that he has many years ahead of him to catch up and a faithful God watching out for him.
We would love prayer so that we could get him off his medication soon so that he could start growing and reduce the long term side effects.
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