Remission?

So many keep asking if Max is in remission.  The answers we are getting from the doctors is that Max is still considered a "partial remission".  While we have had 2 clear CT scans, he appears to be cancer-free, but his body/immune system seems to still be fighting something in his body.  So we are still trying to get OMS under control and full remission requires him to be off all of his medication.  After much discussion with many different doctors and specialists we have come up with a plan to decrease his medication slowly over the next 7 months and continue to monitor him closely for new symptoms, as new symptoms crop up we may need to extend that time, but God willing we will get all our prayer warriors on board and who knows we could surprise those doctors again and get him weaned off sooner.   He will continue to get his IVIG infusions every other month until we are off of our clinical trial (hopefully in 6-9 months) and than we will have more flexibility to give him more infusions depending on exposures to germs around us and as we see flair ups of symptoms.