Burt Family 2013

Burt Family 2013

Tuesday, December 14, 2010

Genetics

We met with the Oncology Geneticist and and Genetic Counselors yesterday.  They have done a bunch of research on Max's condition and they were only able to trace one set of identical twins that presented with matching neuroblastomas. This doesn't really affect us since Max and Molly are fraternal, so Molly's risk will be the same as Madison.  They said both Madison and Molly are 6 times more likely to have a neuroblastoma, however they think Max's cancer may be a spontaneous case since we can't trace any other family members that have had a form of childhood cancer. We did make the decision to move forward and have at least Molly tested for now. She had a blood test and exam and we have an abdominal ultrasound scheduled forThursday to check out her adrenal glands.  Our new oncologist says that there is a new type of screening that tries to find an ALK gene that we will have Max tested for and then can run matching tests with Madison and Molly. 
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2 comments:

  1. Linda MDecember 17, 2010 at 6:49 AM

    Just wanted to pass along my thanks for all the great info in this blog. Really helps to know current prayer needs, issues, etc. Praying for all of you today!

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