Burt Family 2013

Burt Family 2013

Friday, December 17, 2010

Genetics Update

More good news! Molly's ultrasound came back "unremarkable"  Yeah! This means no tumors.  I also talked with our Genetic Counselor today and the blood and urine tests came back negative for elevated HVA/VMA counts. Some kids have elevated numbers to indicate a tumor, and some don't. It's not completely accurate but can sometimes pickup issues. Max never had elevated numbers even when he had the tumor so we knew there would be a good chance the test wouldn't be completely helpful.  We will proceed to try to pickup the ALK gene in Max, if this can be found then we will test Madison and Molly using this method of screening.

I take for granted what a good patient Max can be during all these procedures. Poor Molly thought that the ultrasound tech was going to kill  her and screamed bloody murder for a whole hour, she laid on top of me and I tried to restrain her with my limbs to hold her still.  I guess this test would seem scary to a little kid who doesn't understand what is going on.

1 comment:

  1. It sounds harrowing for a mom who has to restrain her sobbing child for an hour, too... Praying for strength for you, Kari - strength of body and mind and spirit. The Lord himself with equip you with every thing you need in this journey. Heb 13:21

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