The Burt Family Blog: 6 days to go!

Sunday, May 27, 2012

6 days to go!

Today's Make-A-Wish countdown surprise was disney stickers in all their favorite characters. Mom and Dad got woken up pretty early this morning with very excited kids reminding us that we had a gift to open and only 6 days left!!

2 comments:

Ranita GoodinMay 28, 2012 at 1:35 AM
I am absolutely LOVING sharing your excitement through this blog! :D
ReplyDelete
Replies
Linda MMay 28, 2012 at 10:17 AM
So excited for you all!
ReplyDelete
Replies

Add comment

FAQ: Doctor Talk

WHAT DOES MAX HAVE? Max has a neuroblastoma (malignant tumor) of his right adrenal gland. With surgery the tumor was removed, but was found in his lymphnode, it is staged at IIb. Max has also been diagnosed with a syndrome called Opsoclonus Myoclonus Ataxia Syndrome (OMS).

WHAT IS OMS? OMS causes problems with coordination, walking, trembling; and causes rapid eye movement. OMS is thought to be triggered solely by neuroblastomas. The OMS is his body's immune system producing antibodies to combat the cancer and these antibodies are attacking the nervous system function and motor skills in his cerebellum.

HOW DOES IT GET FIXED? First surgery to remove the tumor. Then lots of medication, chemotherapy, PT/OT and speech therapy to help his motor skills. And prayer. :)

Burt Family 2013

Sunday, May 27, 2012

6 days to go!

2 comments: