Burt Family 2013

Burt Family 2013

Thursday, May 10, 2012

Weight Gain!

Check out this little belly that has developed!   I don't know many that get excited to gain weight but we are!  In the last month since we have finished the last round of chemo Max has been able to gain a whole kilogram!!    No height yet, but a little progress is very exciting.   We were able to finally get Max's supplements covered by insurance within the last couple weeks and the dietician had bumped him up 3-4 boost or pediasures every day.  Luckily he enjoys them and we even found a brand that comes in a little juice box that makes it easier for him to drink when we are away from home.  They were costing us about about $2 a piece before and now that we were able to get our insurance on board our new company is charging our insurance $550 a month just for his drinks. Since he has had a failure to thrive diagnosis for over a year now it was easier for us to prove to insurance that is was better for them to cover the supplements instead of having to cover G-Tube supplies. Turns out Max needs massive amounts of calories to make any progress in maintaining or gaining weight.  We are up to about 3000 calories day in order to make any movement. This is great news and gets us even farther way from our tube cut off. Woohoo!

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